DLBC Consortium

The purpose of Dementia with Lewy Bodies Consortium (DLBC) will be to develop a collection of participants with Lewy body dementia or Lewy body dementia/mci or Parkinson’s disease (PD) dementia that will be followed over a period of up to 10 years with detailed clinical information, collection of biospecimens, and imaging data. The establishment of a DLBC will also promote additional future research, including therapeutic trials, by having a readily available supply of samples.

You will be asked to answer questions related to your health/diagnosis, quality of life, sleep, anxiety and depression, activities of daily living, and memory and thinking. You will be asked to give a blood sample and cerebrospinal fluid (CSF) sample every year. CSF will be obtained through a lumbar puncture (a procedure used to diagnose certain health conditions where a needle is inserted into the spinal cord to draw out fluid). You will also be asked to have a magnetic resonance image (MRI) of the brain and a SPECT scan of the brain.

In order to participate you must meet the following criteria:

• Have been diagnosed with DLB or Parkinson's disease with dementia.
• Are males or females and 40 to 90 years of age at the time of consent.
• Live with a regular caregiver who will attend visits with you.

You will be excluded from the study if any of the following criteria apply to you:

• Have evidence of stroke, head trauma, tumor, or other neurological disease.
• Have reasons that may interfere with biofluid sample or imaging procedure.

This is a partial list of eligibility requirements. To inquire about your eligibility, please call the contact number provided. If you wish to inquire via email, please include the title of the study in your message.